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October 2005
One more year passed by. For three years and a half Arianna feels all right,
goes to school, play a bunch of sports, lives like her friends of the same
age. This year she skied with Joyful Ski Club and began in triathlon kids.
She assiduously swim and play with Ruhm, her big “golden retriever” dog just
arrived last summer to turn our life upside down.
Ary has vague reminiscences of the hospital, reminiscences kept in mind
because of the periodic check up, that, although always more infrequent,
help us to keep us easy.
Arianna’s website is signalled by many search engines and her story is cited
on some American associations pages where they treat rare kid tumors.
For this reason we decided to keep going with updates in the future, so that
her experience can comfort for who lives it now or will face it in the
future.
To read kid’s stories winning the battle helped us so much during the months
of Ary’s desease, so we hope it will do the same for those parents who
unluckily should meet this patology on their path. |
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October 2004
It’s almost three year since the last news were written and since the last
surgery Arianna underwent. Four and a half since the first diagnosis.
Arianna feel wonderful!
We apologize with everybody for the time the website has not been operating,
but some problems with the former provider obliged us to change the web
address.
“Little chicken”, her nickname due to the thighs, goes to second year of
school, she swims like her sister does. He took one year to learn reading
and writing but now she’s at the same level of her schoolmates. Her
favourite sports are: alpine skiing (the cross-country is too tiring),
mountain bike (she’s regional vice-champion G1 category) and swimming.
Check up are reduced to 90 days, just blood drawing, echocardio and general
visit. The famous alphafetoprotein remain always around 3 u/mm. She keeps
going with natural medicines, but doesn’t need specific therapy anymore.
During these years she knew many friends among UGI volunteers, like Beppe,
Francesco, Tony, Cecilia, Marina, Sara, Lorenzo, Davide, Yvette, Silvia,
Franco, Manuela e many others who with Mauro, and now even Mommy, help for a
better life children and parents of OIRM Hospital Cancer Dept. in Turin.
This updating will occur annually and if you want to write to us, we’ll be
happy to answer personally. Sometimes come back to see new pictures in “my
pictures” section. |
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January 31st, 2002
When during the last september, after a serie of 4 chemoterapy cycle due to a relapse occurred in April, despite a negative TC scan, Arianna kept showing a moderate high AFP level, the question was: so what is it going to happen? What does today oncology suggest in these situation? We were looking for an answer among the doctors who took care of her health so far, but these answers seldom or never were reassuring., rather , most of the times totally discouraging.
So, waiting for more diagnostic events, at last surgically considerable, we decided to suspend any kind of chemoterapic treatment and begun to look beyond traditional, conventional medicine or how we want to call it.
We went into an unknown world, because less advertised, less sponsorised, less or nothing subsidized by public or private money, government financing, pharmaceutical companies, by big and popular anticancer association: the world of alternative therapy.
A variegated world and maybe a less coded one, that is called “non-official medicine”, made of homeopathy, phitoterapy, elettro-magnetic therapy, psicological analysis, that besides of the chemiotherapies try to begin from aetiology, or rather from the patological origin, instead of the effects that cancer causes.
No doubt that in a massive evidence of desease and with a certain clinical path of traditional medicine, it would have been difficult to accept different remedies form the ones proposed in the oncological ward of any hospital; but after december surgery and more after AFP level that Arianna showed the 16th of January (2,5 u/mm) and no indication suggest other chemotherapy, Sandra and I decided that times to try these alternative ways was come. There’s no questions about what has been done and what has saved our daughter’s life so far, but it’s anyway something that traditional medicine do not offer, that’s prevention, a research of the causes that made possible the origin of the desease.
If somebody is interested in details and contacts that we get during these months, we are available to provide them.
In the meantime we enlarged our “links”, where you will find some interesting proposal, that we prefer to define “integrative” rather than “alternative”.
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January 7th, 2002
After lung operation, Brussels surgeons suggested to check every week AFP level. Few days after surgery they were 120 (after being 350 before it).
A first drawing was made Dec. 24th, followed by a second one Dec. 31rst. We have received results only today that are 19 the first and 15,5 the second one: they have fallen down considerably!. Tomorrow a new drawing and a new waiting. We live in this way, day after day. But it's wonderful to see our little "earthquake" spending Christmas holidays in Menton by the sea with grandparents and Alessandro, five years old, our dear friend Paola son, who left him one year ago, by the way due to a rare cancer desease.
She ate a lot, played a lot, slept a lot and took some new natural medicine, I will talk about more specifically in the next
days.
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Dec. 17th, 2001
Arianna has gone up from ICU to the wonderful "surgery" floor. After one hour she was already riding the tricycle! I don't tell you anything more.
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Dec. 13th, 2001
Arianna has been operated this afternoon; she woke up sore and crying but the important thing actually is that only 1 cm of tumoral tissue has been removed and no other location has been found around it. So
it's excluded a new surgery on the other lung that would have been scheduled if they
did.
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Dec, 11th, 2001
We sent a copy of the TC scans, so surgery has been scheduled for Thursday 13th.
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December 6th, 2001
Mommy Sandra, grandmother Aurella and Arianna fly to Brussels. PET scan negative, but losing TC scans during the trip
(accomplice a taxi driver) is delaying the operation.
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November 27th, 2001
The time for a new TC scan has come. The report talks about a new methastasis on the base of the right
lung. Surgery looks like the obliged choice now. So we posponed the two weeks of natural relief scheduled from
Dec. 9th at Cell Vital Center in Baden-Baden (Germany).
We have decided to come back to Brussels for surgery. As Dr. Gennari says
"never change winning horse during the race, unless it becomes lame".
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November 20th, 2001
New draw and, after only two days, the answer: 137.
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November 12th, 2001
Here's the new AFP level: 40. Back in the nightmare.
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November 3rd, 2001
Waiting seems to be a constant unvariable of a theorem whose result we don't
know. Monday will be the day of a further blood drawing for AFP
evaluation, the tumoral marker who indicates Arianna cancer condition. Several days are needed for results
(approximately 10) and then it will be time for deciding once again: new wait or action?
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